I created my own e-card today!
So after the tactless voicemail I received from the RE’s nurse last week which included both: abnormal cortisol levels and cancelled IVF cycle, the nurses did not return my emails nor voicemails for a week! Normally, they reply within a 24 hour period, but this time it took me writing an angry email to coerce a reply.
I had asked to see a scanned copy of my lab results, but instead, she just gave me two values for my cortisol levels which mean nothing to me without reference levels or even UNITS! Sometimes the results are given in mcg/dL and other times it is in nmol/dL, and the conversion factor is somewhere around 27.59 to go from the former to the latter.
The upper range of normal is from 5 to 23 mcg/dL, which converts to an upper limit of 635 nmol/dL. This puts me within the normal range for my first result (pre-Marvelon).
My second result, was taken after I had started Marvelon, which can significantly increase serum cortisol levels anyway, so I’m skeptical of how they feel my second cortisol level is data they can even consider to be reliable.
I asked two other questions in my email, which she didn’t address at all.
For partially privately paid health care in Canada, and for a treatment cycle that costs 11 000 not including the cost of fertility drugs, I was expecting better care.
I’ve been shopping around for different RE clinics, but the reality is that they’re all the same: one doctor, 5 clinics, and a bunch of nurses who have been trained not to think for themselves.
My beef is not with the nursing profession- but rather with how these clinics are run- and how it makes me and other patients feel like we are nothing but a file number with a dollar sign.
Oh- and I’m STILL waiting to hear from the endocrinologist. Argh.
Missed a call today from our RE’s clinic. They left a voicemail that make me want to cry and call them back, both at the same time.
Last week, my blood test revealed some abnormally elevated cortisol levels. The RE was concerned, so he had me come in this week to have my blood tested again. They called to let me know the following things:
1. My cortisol levels were still really high.
2. They’ve sent an urgent referral to an endocrinologist to have it investigated further.
3. Our IVF treatment cycle has been cancelled until further notice.
I am on the brink of crying, not just because this Marvelon is seriously fucking with my emotions (extremely irritable and anxious lately possibly because of it), but also because I’m:
A. So disappointed that we can’t proceed with the egg retrieval.
B. Actually worried about what might be causing the elevated cortisol.
All of my blood work has been normal up until now, and I doubt that the teenage brats at school are driving me nutz enough to cause a sustained elevation of cortisol!
Anyway, all I can do is keep my fingers crossed that I get in to see the endocrinologist soon, and we figure out what this nonsense is about.
Aloha Blogsphere! It’s been a while since I’ve posted anything meaty, and I think it’s time to update you on how things are going.
Well, I’ve seem to come out of my subfertility depression, and entered into a whole different sort of emotional disorder- anxiety. September finds both the wife and I back in the classroom, stressed as fuck, as transitioning from relaxing on a beach in Maui to dealing with rebellious teenagers is a shock to the system. We both also worked part of the summer teaching summer school, and doing some renovations on our home, so it really didn’t feel like we had much time off.
I’m at a new school this year, and am teaching what is arguably the worst grade and courses this semester. The blood work from my most recent draw (last week) came back and apparently my cortisol level is alarmingly high. High enough that they want to retest me tomorrow and do a full blood panel to investigate further. I blame it on the stress of TTC-ing concurrent to the start of a new school year. I know I am stressed because I’ve been biting my cuticles again, craving sugary comfort foods, and can’t sleep unless I’ve gotten out all of my aggression at the gym or a muay thai class. I am finding that I’m having mini anxiety attacks daily now, and the only thing helping me is the exercise and leaving my work at school.
Darling Wife is super stressed as well, which has exacerbated my anxiety levels. She’s taken on a position of responsibility at school and it is like working 2 jobs.
But despite all of this, these are exciting times.
We both started our periods within 24 hours of each other, and went in for day 3 blood work and ultrasounds. We’ve been put on Marvelon for ease of IVF timing, since we will be doing reciprocal IVF- my buns, her oven.
So far, this is how it’s gonna work:
CD1: Sept 15/16- we got our periods- called to make day 2/3 blood work and ultrasound appointments
CD2/3: BW and U/S- my cortisol was high
CD3: We both start Marvelon
CD7: Wife has a sonohysterogram, which revealed possible blockage of her left fallopian tube (doesn’t matter because she’s the oven); Review appointment with RE
CD9: I have my blood redrawn to check cortisol levels again, and do a full blood work-up
CD18: October 2- Start Lupron, 20 units, daily in the morning- continue until told to stop
CD 24: October 8- take last BCP
CD 27- 31: October 11 to 15- sometime within this time-frame we should get a period. Call to book CD3 appointment for BW and U/S
Treatment Cycle: Me
CD3- go in for BW and U/S, start Gonal-F daily for 8-12 days (in addition to Lupron); Regular monitoring of hormone levels and follicles until they are mature enough
CD unknown- HCG shot
CD unknown- Egg retrieval
Treatment Cycle: Wife
CD3- go in for BW and U/S, start Estrace for unknown number of days
CD unknown- 5 days after egg retrieval, embryo transfer
We’re pretty excited, and when we work out the timing of it all, Darling Wife may be going in for the embryo transfer close to Halloween. We’ve got awesome costumes all set for this year, and I think she should go to the appointment dressed as a fairy princess (DW is pretty butch, which is why her costume is so hilarious to both of us).
I’ve been reading a lot about egg retrievals, which, to be honest freaks the shit out of me. I too, am considering going to the appointment with fake blood on my face, wearing super long incisors- dressed as a ovary-bloated Dracula.